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Privacy policy

The ESCAPE-pain programme is committed to protecting your privacy. This policy is made in the light of the requirements of the UK GDPR and the Data Protection Act 2018, which we take very seriously.

Please note that ESCAPE-pain itself is not a legal entity and does not hold a legal standing as a data controller or as a data processor. ESCAPE-pain is hosted by the medical charity, Orthopaedic Research UK, who act as the Data Controller for all ESCAPE-pain data. You can find more about Orthopaedic Research UK here. All references to “we”, can be interpreted as the ESCAPE-pain team at Orthopaedic Research UK.

We will store your data securely, with appropriate safeguards in place to protect your information against unauthorised or unlawful processing. If you have any questions about the policy, please write to us at ESCAPE-pain, Orthopaedic Research UK, Furlong House, 10A Chandos Street, London W1G 9DQ or by email:

How do we collect information?

We will obtain personal information from you when you visit our website, enquire about our activities, enrol as an ESCAPE-pain facilitator or trainer, register outcomes with us as a patient of the ESCAPE-pain programme, register with us through the ESCAPE-pain app, sign up to our e-newsletter, make a donation to us or otherwise provide us with personal information through correspondence or engagement with us.

What information do we collect?

The types of information collected will differ depending on your engagement with ESCAPE-pain. The information collected may include: cookies, name, date of birth, e-mail address, gender, first 3 digits of postcode, job title, organisation affiliation, telephone number and credit/debit card details and only where you consent to provide it, some sensitive personal data such as ethnicity and healthcare data.

How do we use this information?

We will use your personal information to provide you with the services, products or information you have requested, for administration purposes and, if you have given consent, for fundraising purposes.

Where your information has been provided for the purposes of the ESCAPE-pain programme, we will use your personal data to allow the proper function and facilitation of the programme, by providing all the relevant information to our partners and trainers as well as retaining certain patient data to properly analyse and manage the effectiveness of the programme.

We will not sell or swap your details with any third parties but we may share your information with our service providers, agents and associated organisations authorised to act on our behalf to provide the services you have requested.

For instance, when you order literature, buy goods or donate, we may need to pass your information to companies who may provide warehousing, order processing, payment processing and other services for us. However, they can only use your information to deliver those services.

We will not share your personal information with third parties or used in any other way other than described in this policy, unless required by law.

Where your personal information has been captured by consent, you can withdraw your consent at any time by contacting ESCAPE-pain, Orthopaedic Research UK, Furlong House, 10A Chandos Street, London W1G 9DQ or by email at

Our Data Retention Policy

All fundraising, events, newsletter and volunteering information is kept for 7 years from the time of your last contact.

However, concerning all the data we process relying on your consent, we will stop processing your information and sending our newsletter from the moment you withdraw your consent.

How do we protect personal information?

When you give us personal information, we take steps to ensure that it’s treated securely. We use a secure server to host the data we process. Moreover, all our programmes and tools are accessible only by authorised personnel and protected by passwords. We also take appropriate measures to ensure that all the information disclosed to us is kept secure, accurate and up to date and kept only for so long as is necessary for the purposes for which it is given. Particularly, we store data and information in Microsoft 365 environment, which ensure regular backups and owns the most recent information security certification, ISO 27001.

Unfortunately, no data transmission over the Internet is 100% secure. While we make every reasonable effort to ensure that information sent to us is done so securely, we cannot warrant the security of information transmitted to us through the internet. When you transmit information to us via the internet, you do so at your own risk. However, when we transmit data to our stakeholders, we apply all reasonable measures to ensure that data are shared securely and with all the appropriate safeguards, such as de-identification and encryption.

Use of ‘cookies’

Like every website, the ESCAPE-pain website uses cookies. ‘Cookies’ are small pieces of information sent by an organisation to your computer and stored on your hard drive to allow that website to recognise you when you visit. They collect statistical data about your browsing actions and patterns and do not identify you as an individual.

Your cookies will be used for strictly necessary purposes in order for our website to run effectively and for you (as the viewer) to be able to access the website.

ESCAPE-pain also has the functionality to collect analytical and Advertisement cookies.

  • Analytical (also statistical cookies) collect information about how a viewer uses a website, such as which pages you visit, and which links a viewer clicked on. Analytical cookies track when a viewer visits a site for the first time, as well as when they are a return viewer to the site. These cookies also track how long a viewer spends on a site at a given time. These cookies also track what link a viewer clicked on to access the site, and what keywords (if any) were used to generate the search. However, none of this information can be used to identify a person. It is all aggregated and, therefore, anonymised.
  • Advertisement cookies are used to provide visitors with relevant advertisements and marketing campaigns. These cookies will store information about how a user uses the website to present them with relevant advertisements according to the user profile.

Even though analytical and advertisement cookies will not be able to identify you as a person, it is possible for you to opt-out of having any analytical and advertisement cookies being collected when you visit our website, and you can do so by utilising our cookie banner.

If you wish to change your cookie preferences, you can do so at anytime by clicking on the following hyperlinked text: Change Cookie Preferences.

What is our lawful basis for processing your personal data?

The lawful basis we rely upon differ according to the different category of data processed and its related purposes.

Consequently, we have listed the different lawful bases we rely upon according to the above-mentioned variables:

Article 6(1)(e) – public interest

We rely on public interest to process data for the purpose of providing clinical support within the ESCAPE-pain programme.

The purpose of the ESCAPE-pain programme is a rehabilitation programme for individuals suffering with osteoarthritis. Healthcare is one of the core public interest activities, and any activities which fundamentally improve patient outcomes is carried out in the public interest.

The data will be carried out in the interest of service improvement and quality assurance of the ESCAPE-pain programme which will in turn be of benefit to the public interest.

Article 6(1)(a) – consent

We rely on data subjects’ consent to inform you about the ESCAPE-pain programme via our Newsletter.

Newsletter Transparency Notice

What information we collect

If you sign up for our newsletter, we will collect the following information about you: name, surname, email address, organisation you belong to and professional role.

How we use your information

We will use this information to provide you with information regarding the ESCAPE-pain programme. This means that if you decide to sign up, you will receive our newsletter every four months.

It is worth highlighting that it is your right to withdraw consent just as freely as you have granted it at any time. You can do it by sending an email to Moreover, to stop receiving newsletter emails from ESCAPE-pain/ORUK you can exercise this choice by, clicking on the unsubscribe link in the relevant email received from us.

Article 9(2)(h) – provision of health or social care

We also collect special category data, such as data concerning the physical health of an individual, which requires its own category of processing under Article 9 of the UK GDPR.

As explained above under Article 6(1)(e), fundamentally, the ESCAPE-pain programme is set up for the purposes of rehabilitation to benefit people with musculoskeletal pain.

Therefore, we rely upon article 9(2)(h) to process health data and in some cases ethnicity for the provision of health or social care treatment.

Will we share/ disclose the information we collect with third parties?

The only third parties whom your personal data may be shared with will be third parties which Orthopaedic Research UK has a contractual relationship with. These third parties will act as the Data Processor and handle the data on explicit contractual and legal obligations on behalf of us. We share data with different categories of third parties based on each sharing purpose.

For the purpose of internal organisation, administration and communication, we share data with Google, Outlook and Microsoft.

For the purposes of analysis and to run our website and app efficiently, we share data with Pixelfield and PadCreative.

In conclusion, as part of our newsletter communications, we use a processor for the purpose of sending newsletter communications to individuals who have consented into receiving the newsletter.

The processor we use for this service is Mailchimp (The Rocket Science Group LLC), who are based in the United States of America. As such, the data will be transferred outside of the EEA. However, we do have in place Standard Contractual Clauses (for the transfer of personal data to processors established in third countries under Directive 95/46/EC) in place with our data processing agreement with Mailchimp. This allows us to lawfully transfer the required data to Mailchimp even though they operate outside of the EEA. As someone who has signed up to the newsletter, you are able to opt-out of this at any time by emailing

We may also need to disclose your information if required to do so by law. We do not sell or share personal details to third parties for the purpose of marketing.

It is important to note that any information we share with third party organisations will be the absolute minimum personal data required in order for them to provide the relevant service. All associated organisations are to satisfy our criteria for information security and data protection.

How can I access and update my information?

If your personal details change, please help us to keep your information up to date by notifying us at:

ESCAPE-pain, Orthopaedic Research UK, Furlong House, 10A Chandos Street, London W1G 9DQ or by email at

The accuracy of your information is important to us. We will correct or remove information we hold about you which you tell us is inaccurate.

Under the UK GDPR you have the right to ask for a copy of the information we hold about you without charge and to have any inaccuracies in your information corrected. Such requests need to be made in writing to the address above. Kindly contact us to obtain the ‘Subject Access’ Form.

Your personal data rights and how to exercise them

Individuals have certain rights over their personal data and data controllers are responsible for fulfilling these rights. You can find out more information around your rights by visiting the Information Commissioner’s Office website at the following link:

In addition to your other rights, as mentioned in the transparency notice section, it is your right to withdraw consent just as freely as you have granted it at any time. You can exercise any of your personal data rights, including withdrawing consent, by sending an email to

Changes to this privacy statement

Despite any changes we make to this privacy statement we will always use your personal data for the purposes we outline unless you give your express consent for us to do otherwise, and in accordance with the UK GDPR.

Raising a question or making a complaint

Should you have any queries about how your information is used, or if you have any questions or concerns on how your information is used, please contact

If you still remain unhappy with the answers provided, after engaging with the team above, you can make a complaint directly to Orthopaedic Research UK’s Data Protection Officer at:

Alternatively, if we are unable to resolve a complaint you have with us, you also have the right to contact or make a complaint to the Information Commissioner’s Office:

Information Commissioner’s Office
Wycliffe House
Water Lane
Cheshire SK9 5AF

Phone: 0303 123 1113 (local rate) or 01625 545 745 if you prefer to use a national rate number.

Email ICO

Report a concern on the ICO website