ESCAPE-pain delivers the National Institute for Health and Care Excellence (NICE) core recommendations of exercise and education, for the management of osteoarthritis. Our clinical content is kept up to date with the latest clinical guidance for the management of osteoarthritis. The clinical content is updated as and when the messaging from NHS England, Public Health England and NICE is published/updated. This information is also reviewed by our Clinical Director.

The non-clinical content on our website is reviewed and updated fortnightly or sooner if inaccuracies are found.

The website was designed with involvement from a patient group who had participated in the ESCAPE-pain programme for knees and hips. Since its launch, any significant structural changes to the website have sought input from a number of different stakeholders including our Patient Representative.

From time to time we do a call-out for user feedback. This is so that we can improve our understanding of user needs in developing the website/app/online tool and to help us to customise the website/app/online tool to improve its usefulness to our user group.

If you note any inaccuracies, missing information or technical issues please contact us at hello@escape-pain.org. We will reply within 3 working days of receiving the email notification of these issues and any other user feedback you wish to contribute.

This website/app/online tool is provided “as is” without any representations or warranties, express or implied. The ESCAPE-pain website/app/online tool make no representations or warranties in relation to this website/app/online tool or the information and materials provided on this website/app/online tool.

Anyone acting on any advice or information contained on the site does so entirely at their own risk.

Without prejudice to the generality of the foregoing paragraph, ESCAPE-pain does not warrant that: this website/app/online tool will be constantly available, or available at all; the information on this website/app/online tool is as complete, true, accurate or non-misleading as is reasonably possible and is intended to supplement not replace other medical advice.

The ESCAPE-pain information contained on the website/app/online tool are provided for reference only and should not to be used as the sole basis for treatment, prescription and care of your condition and health. They should be used in conjunction with the advice and professional judgment of your GP or other healthcare practitioner. If you require bespoke advice in relation to any matter you should consult an appropriate professional.

ESCAPE-pain will not be liable to you (whether under the law of contact, the law of torts or otherwise) in relation to the contents of, or use of, or otherwise in connection with, this website/ app/ online tool: for any direct loss; or for any indirect, special or consequential loss; or for any business losses, loss of revenue, income, profits or anticipated savings, loss of contracts or business relationships, loss of reputation or goodwill, or loss or corruption of information or data including without limitation any personal injury caused in the course of following or attempting to follow the advice set out on the ESCAPE-pain website/ app/ online tool.

These limitations of liability apply even if ESCAPE-pain has been expressly advised of the potential loss.

You accept that ESCAPE-pain has an interest in limiting the personal liability of its officers and employees. You agree that you will not bring any claim personally against ESCAPE-pain’s officers or employees in respect of any losses you suffer in connection with the website/app/online tool.

You agree that the limitations of warranties and liability set out in this website/app/online tool disclaimer will protect ESCAPE-pain’s officers, employees, agents, subsidiaries, successors, assigns and sub-contractors as well as ESCAPE-pain.

By consenting to some/ all of the items that were presented to you when you registered your account or updated your existing account, you consent to us collecting and using your details in accordance with these Terms of Use and Privacy Statement.

This is entirely optional, and you have the right to change your mind and withdraw consent at any time. If you decide you no longer wish to be contacted by us please notify us by email to hello@escape-pain.org or clicking ‘unsubscribe’ in the footer of our newsletters.

If you choose to unsubscribe from email contact by ESCAPE-pain or an associated third party, it may take a few days to remove your details from our list. Regrettably, this may mean you might receive an email before your details have been updated.

We collect information from you when you register an account with us on the website/app/online tool. The types of information collected might include names, e-mail address, profession, location, age, gender, and other details including your IP address.

We also collect information from you when you contact us by any means (written or other) with feedback, queries, complaints etc.

• We ask you to register so that we can track the spread of ESCAPE-pain for our administrative purposes.
• We would like to use these details to send you regular updates, newsletters and other ESCAPE-pain services and products, or related information that we feel may be relevant to you.
• We would also like to use these details to occasionally contact you for feedback about the website/app/online tool and the ESCAPE-pain programme. This is so that we can improve our understanding of your needs in developing the website/app/online tool and to help us to customise the website/app/online tool to improve its usefulness to you.

We collect information from you when you visit our website. Website usage information is collected using cookies.

Please see the section below on ‘Cookies’.

We collect information from you when you complete the clinical questionnaires at the beginning and end of the programme via the app/online tool. We ask you to complete two types of questionnaires (listed below), the scores of which you can use to measure your progress throughout the programme.

• MSK-HQ – This questionnaire determines your ‘musculoskeletal health status’.
• KOOS – This questionnaire will help you understand your joint pain.

We will use the information provided in your clinical questionnaires to measure overall progress through the programme for all participants. This information is used in an anonymous and aggregated format to evaluate whether or not the programme continues to be clinically effective.

We have adopted measures to ensure that users’ personal details are not misused, accidentally destroyed, lost or altered. Where information is transferred to a third party, that third party will be required to keep your personal details secure.

We endeavour to prevent unauthorised disclosures of your personal information by other people, but we are not responsible for any unauthorised disclosures or other breaches of security or for the actions of others if the information was passed to them with your authority or with the authority of anybody other than us or our member organisations.

Please be aware that if you disclose information on chat areas, forums or other public services it may be possible for other people to use this information. We are not responsible for the disclosure of any information you post in this way.

Your data is securely transmitted/encrypted in transit over secure https protocol, from the website/app/digital tool to the server. Furthermore, all data on servers is encrypted at rest. All servers have firewalls in place.

We use Let’s Encrypt a free, automated, and open certificate authority (CA), run for the public’s benefit. It is a service provided by the Internet Security Research Group (ISRG). They provide digital certificates needed in order to enable HTTPS (SSL/TLS) for websites and in doing so create a more secure and privacy-respecting Web.

Our handling of your data is compliant with the General Data Protection Regulation launched in May 2018.

Personal data is retained for 7 years. This does not affect your right to request that your personal details are removed from our system. Please see below no. 7 “Accessing your data”.

Given the global nature of the Internet, the use of the Internet to collect and process personal details may involve the transmission of data internationally. Therefore, by browsing this website/app/online tool and communicating electronically with us, you acknowledge that we may process your personal details outside the European Economic Area (EEA).

Please note that where we do transfer your personal data outside the EEA, we will always provide proper transparency information to you regarding the transfer, and ensure that the transfer is lawful under Article 46 UK GDPR and that there are appropriate safeguards in place in respect of that transfer. Any transfer of personal data to third parties outside the EEA will be subject to its own transfer risk assessment.

You can update the personal details we hold on you by updating them within the password-controlled area of the site or contacting us and we will amend them for you. Please try and keep your personal details up to date at all times.

We may change or update the website/app/online tool Terms of Use (for example in order to comply with new legal requirements) so please do check here from time to time to note such changes. We reserve the right to change any part of this agreement without notice.

You have the right to request a copy of the information that we hold about you, free of charge. If you would like a copy of some, or all, of your personal information, please provide a written request. To make a request, you should send an email to hello@escape-pain.org and provide your full name, postal address and postcode.

We will correct any inaccuracies if these are notified to us.

You can also request that the personal details that we hold about you are removed from our system. However, this will mean that you will longer be able to access parts of the website/app/online tool that require a log in.

We may use the information we collect from you so that we can tailor content and the presentation of the website/app/online tool to match your preferences. We may compile anonymous aggregated statistics using information provided by cookies to develop a clearer picture of which parts of this website/app/online tool are the most popular to its visitors.
The ESCAPE-pain programme uses cookies to assist with Google Analytics, in order to improve the user experience of our website. We also use cookies to enable our Twitter feed.

You can accept or decline cookies by modifying the settings in your browser.

However, you may not be able to use all the features of the website/app/online tool if cookies are disabled.

Our users are not initially supplied with registration details. When you are able to register on the website/app/online tool, login details will be distributed to you automatically via email.

Here are some commitments you make to us relating to registering and maintaining the security of your account:

• You will not provide any false personal information on the ESCAPE-pain website/app/online tool, or create an account for anyone other than yourself without permission;
• You will keep your contact information accurate and up-to-date;
• You will not share your password, let anyone else access your account, or do anything else that might jeopardize the security of your account;
• You will not transfer your account to anyone without first getting our permission.

We reserve the right to change these Terms of Use and any other terms and conditions at any time without notice.

If you violate the letter or spirit of this statement, or otherwise create possible legal exposure for us, we can stop providing all or part of the website/app/online tool to you.

We will generally try to notify you but have no obligation to do so. You may also delete your account at any time. In all such cases, this statement shall remain binding.

If anyone brings a claim against us related to your actions or your content on the website/app/online tool, you will indemnify and hold us harmless from and against all damages, losses, and expenses of any kind (including reasonable legal fees and costs) related to such claim. You agree that the Laws of England & Wales apply, and you irrevocably consent to the jurisdiction of the courts of England & Wales in the event of any dispute whatsoever or howsoever arising.